Patient Stories

Wenn der Augen-Blick zum Kraftakt wird - Wieland Rödel

Wieland

Wieland Rödel leidet an einer seltenen Erkrankung der Muskelzellen / Selbsthiflegruppe für Betroffene....

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Meet Jack - Jack White

Jack

Our son Jack is almost ten years old and his desires are the same as every other kid his age – to feel happy, be healthy and live life to the fullest. Unlike other children, Jack was diagnosed at seven months of age with a mitochondrial disorder....

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This is Gaby

Gaby

Gaby is our 4th child. There were subtle signs during pregnancy, and again after birth that indicated that things were not going “according to the norm”, but we were not prepared for the devastating news that was to come…

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The Story of Archer - Archer Banjo Cleary

Archer

My name is Jane Cleary and this is my story:Sadly I lost my baby Archer Banjo Cleary on the 26th April 2013 to suspected mitochondrial disease, he was just shy of turning 8 months.

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HOLA! SOY EMY - Emeka Maduka Amengual

Emy

Soy Emy, Esta es mi historia...

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MEET CARLOTA - Carlota (Burgos, Spain)

Carlota

El 5 de agosto de 2006, Carlota nació en Burgos, con toda la ilusión de unos padres primerizos...

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MEET TÁLIA - Tália Bacarese-Hamilton

Talia

Tália has severe failure to thrive. She is very small and although she is nearly 7, most people think she is only 3 years old.

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LA STORIA DI UN BAMBINO DI 8 ANNI - La Storia di Filippo

Butterfly

Filippo ha la sindrome di Leigh. Questa storia ci racconta come la sua famiglia combatte per convivere con la malattia e fa fronte alla cura quotidiana di Filippo.

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LIVING IN THE MOMENT - The story of Bob Brieff

Bob

Bob Brieff is looking at what he cán do in stead of what his limitations are. A story of a man who is giving a stronger voice to the adult mitochondrial community.

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MAKING YOUR OWN CHOICES - The story of Marit van der Veer

Marit

Marit feels that she is more than just her disease. It does require controlling your own life and making your own choices.

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