Tuesday, 20 June 2017 18:38

Light up for mito!

Each year, at the third week of September, the Global Mitochondrial Disease Awareness Week is held. The Global Mitochondrial Disease Awareness Week (GMDAW) is marked by awareness, education, fundraising and advocacy efforts to raise awareness about mitochondrial diseases (mito) all around the world. Many events are organised on a national level, but this 'light up' campaign is an international event.

This year the international mito community wants to set the Global Mitochondrial Disease Awareness Week globally on the map by beating the world record of lighting out the most monuments/landmarks ever. Of course in green light, the colour which represents the disease best. The current Guinness World Record for most monuments lighted out (24 hours) is held by Estee Lauder for Breast Cancer Awareness with 38 monuments. The goal for us is to light out 55 monuments for 24 hours worldwide on Saturday/Sunday September 16th-17th 2017. 55 monuments, because in 2017 it is 55 years ago that the first mitochondrial diagnosis was set.

The Guinness World Record organisation has officially recognised the attempt to break the record. And there is a big chance that we are going to make it! There still are many things to organise and communicate but we are getting there.

Watch the world turn green on the 16th of September!

 

 

Questions?

Maureen Latocki (Canada) This email address is being protected from spambots. You need JavaScript enabled to view it.

Rebecca Davis (Australia) This email address is being protected from spambots. You need JavaScript enabled to view it.

Alfons Heetjans (Netherlands) This email address is being protected from spambots. You need JavaScript enabled to view it.