Events

Events

 

From the 18th to the 24th of September the Global Mitochondrial Disease Awareness Week will take place. Around the world Global Mitochondrial Disease Awareness Week will be marked with educational, fundraising and advocacy efforts designed to raise awareness about mitochondrial disease (mito). Within this framework many events will take place in different countries.

Examples of events to raise awareness and funds for research are: walking and biking events, patient information days, symposia with specific topics, fundraising activities, and a special one is the ‘stay in bed day’ event in Australia.

The GMDAW initiative once started in Australia and is now being organized under the flag of IMP. We proudly present this initiative and hope it will find its way to many countries in the world. Curious about what is being organized in your own country? You can have a look at the GMDAW website: www.gmdaw.org

 

MEETers run the Semi de Paris on the 6th of March for IMP

MEET fellows launched a crowd funding campaign on kapipal website for collecting money in order to support the activities of the International Mito Patients organization (IMP) (www.mitopatients.org). Mitochondrial diseases are devastating disorders where the mitochondria, the batteries (energy) of the human body, are not working well. In particular the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems can be affected. The campaign objective is simple: raising awareness about mitochondrial diseases and raising money to help IMP to organize a study into developing a standard therapy for dealing with muscular pain in mitochondrial diseases. A standard which can be used by rehabilitation specialists and physiotherapists all over the world.

The Mitochondrial European Educational Training (MEET) Network presents:
From bench to bedside, and back: Patients MEET Researchers
MEET Symposium 2016, Nijmegen, The Netherlands 

A scientific 2 days symposium specifically addressed to patients, patients families and associations/ foundations of patients will be held in Nijmegen (The Netherlands) in late January 2016. An important peculiarity of this symposium is the direct and proactive role of the young MEET researchers in the organization process.

 

 

15th and 16th of October, 2016

In October 2016 IMP will have its annual meeting for members in Madrid, Spain. The meeting is meant to be for representatives of members only, and for guests who are especially invited. Major developments will be continuously published on this website.