Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.
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MITO
NEWS
Primary Mitochondrial Myopathies: Patient Journey
Navigating the journey to gain a diagnosis of Primary Mitochondrial Myopathy can be unnecessarily long, intensely stressful, and fraught with obstacles....
20 December 2024
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Countdown to Rare Disease Day 2025!
The countdown is on to Rare Disease Day 2025 which takes place on 28 February....
13 December 2024
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Collaboration with MITGEST
IMP is proud to support MITGEST. This international consortium brings together world-class academic experts in mitochondrial research....
9 December 2024
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SIMPATHIC project prepares to launch clinical trial
The SIMPATHIC project is preparing to launch a clinical trial using Sildenafil as a potential treatment for Leigh syndrome. ...
9 December 2024
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IMP joins UK MitoCohort Oversight Committee
IMP are delighted to have been asked to join the UK MitoCohort Oversight Committee. The UK Mitocohort is a UK wide database that collects clinical information on patients living with mito, to help advance understanding of the disease....
9 December 2024
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a member
The POLG Foundation
The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.
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Patient Stories
Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.
About
IMP
International Mito Patients is a network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.
By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.
IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.
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