New Patient Journey for Primary Mitochondrial Myopathies Launched
7 Jul, 2026
IMP has worked with ERN EURO‑NMD and several leading patient organisations, including Mitocon, the Bulgarian Association for Neuromuscular Diseases, and […]...
New TK2d Early Symptom Reflection Tool Supports Better Clinical Conversations
30 Jun, 2026
UMDF, in collaboration with UCB, has launched a new resource designed specifically for people living with TK2d and those who […]...
UCB calls all artists in the mitochondrial disease community
11 Jun, 2026
This year UCB is collaborating with the global Mitochondrial disease community to collect works of art (painting, poetry, photography, sculpture, […]...
Effect of a Mitochondrial Genetic Variant on Sevoflurane Hypersensitivity
10 Jun, 2026
Five years ago, a research project began that is now influencing anesthetic practice worldwide. It all started when Dr. Yaremy […]...
First Patient Dosed in Phase 3 KHENERFIN Study of Sonlicromanol for m.3243A>G Primary Mitochondrial Disease
18 Apr, 2026
First Patient Dosed in Phase 3 KHENERFIN Study of Sonlicromanol for m.3243A>G Primary Mitochondrial Disease Khondrion has announced a major […]...
IMP Welcomes New Members from China, Spain and US
31 Mar, 2026
We are delighted to announce that three additional mitochondrial organisations have joined IMP, further strengthening our global network and amplifying […]...
IMP welcomes European Commission approval of KYGEVVI® for TK2d
31 Mar, 2026
European Commission approves KYGEVVI® for TK2d IMP warmly welcomes the decision by the European Commission to approve KYGEVVI® (doxecitine and doxribtimine) as […]...
Announcing IMP’s New Scientific and Medical Advisory Committee
28 Mar, 2026
Announcing IMP’s New Scientific and Medical Advisory Committee IMP is delighted to introduce our new Scientific and Medical Advisory Committee, a […]...
New MELAS Consensus: A Critical Resource for Doctors and Patients Worldwide
28 Mar, 2026
New MELAS Consensus: A Critical Resource for Doctors and Patients Worldwide In November 2025, leading international experts gathered in Pisa, […]...
MitMED – Building a European Centre of Excellence in Mitochondrial Medicine
28 Mar, 2026
MitMED – Building a European Centre of Excellence in Mitochondrial Medicine Mitochondria are central regulators of cellular life, integrating metabolism, […]...
Growing Recognition of the Patient Voice in Research
25 Mar, 2026
Growing Recognition of the Patient Voice in Research A meaningful shift is taking place in the rare disease research landscape: […]...
Inside the Mito Town Hall: Insights That Matter
25 Mar, 2026
Inside the Mito Town Hall: Insights That Matter The Mito Town Hall meetings have become an important annual touchpoint for […]...
Mito Conference 2026: A Landmark Gathering for Mitochondrial Medicine
16 Mar, 2026
The Mitochondrial Disease Conference 2026, hosted by Mitocon on 23–24 January in Pisa, brought together clinicians, researchers, patients, and industry partners for […]...
Setback for LHON Treatment in the US: IMP Supports Urgent Patient Need
6 Mar, 2026
Setback for LHON Treatment in the US: IMP Supports Urgent Patient Need International Mito Patients (IMP), the global federation representing patient […]...
Strengthening Europe’s Rare Epilepsy Voice Through the E+ Alliance
2 Mar, 2026
Strengthening Europe’s Rare Epilepsy Voice Through the E+ Alliance The E+ Alliance presentation outlines a fast‑growing European network dedicated to […]...
EMA grants positive CHMP opinion for KYGEVVI® for Treatment of TK2d
30 Jan, 2026
EMA grants positive CHMP opinion for Kygevvi® for Treatment of TK2d International Mito Patients (IMP) and the global mitochondrial disease community […]...
Funding for the SynLeigh Project to Advance New Therapies for Leigh Syndrome
22 Dec, 2025
Funding for the SynLeigh Project to Advance New Therapies for Leigh Syndrome IMP, Mitocon and Cure Mito Welcome ERDERA Funding International […]...
IMP Annual Meeting 30-31 May 2026, France
22 Dec, 2025
IMP Annual Meeting 30-31 May 2026, France IMP’s Annual Meeting will take place 30–31 May 2026 at Brit Hotel Acropole, […]...
Patients at the Heart of Research: IMP’s Role in the SIMPATHIC Drug Repurposing Project
22 Dec, 2025
Patients at the Heart of Research: IMP’s Role in the SIMPATHIC Drug Repurposing Project The SIMPATHIC project continues to make […]...
Rare Disease Day 28 Feb 2026
22 Dec, 2025
Rare Disease Day 28 Feb 2026 Rare Disease Day is a global campaign that highlights the 300 million people worldwide […]...