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World Mitochondrial Disease Week

Join us from 15 to 21 September 2025 to raise global awareness of mitochondrial disease. Through shared stories, science, and support, we’re shining a light on this complex condition.
Get involved and explore this year’s campaign.

Save the Dates!

TK2D Awareness Day – 9 September 2025

Help us highlight TK2-related mitochondrial disease and the families affected. This day brings visibility to a rare condition and the urgent need for continued research and care.
Spread the word and share your support.

LHON Awareness Day – 19 September 2025

On LHON Awareness Day, we focus on Leber’s Hereditary Optic Neuropathy – a mitochondrial disease that causes sudden vision loss. Join the call for better understanding, early diagnosis, and support.
Learn more, join our webinar, and help raise awareness.

Light Up for Mito – 20 September 2025

Monuments and buildings around the world will light up green to honor those affected by mitochondrial disease. Help us turn the world green.
See who’s lighting up - join the movement, light up your home green and share your photos to show that mito matters.

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Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.

About
MITO

NEWS

Landmark Success for Mitochondrial Donation: A Milestone for Families Worldwide

The birth of eight healthy babies in the UK through mitochondrial donation (also known as Mitochondrial Replacement Therapy) has been […]...

IMP Announces New Board Following Election

IMP is delighted to announce the results of its recent Board elections, confirming a dynamic and diverse leadership team that […]...

Scientists provide first evidence that the drug sildenafil may benefit patients with Leigh syndrome, and particularly those carrying mutations in the mitochondrial gene MT-ATP6....

Primary Mitochondrial Myopathies: Patient Journey

Navigating the journey to gain a diagnosis of Primary Mitochondrial Myopathy can be unnecessarily long, intensely stressful, and fraught with obstacles....

Collaboration with MITGEST

IMP is proud to support MITGEST. This international consortium brings together world-class academic experts in mitochondrial research....

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a member

The POLG Foundation

The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.


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a member

Are you thinking of becoming an IMP member?

Patient Stories

Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.

About
IMP

International Mito Patients is a non-profit network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.

By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.

IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.


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