Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.
About
MITO
NEWS
Updated TK2d infographics to download
Help raise awareness of the symptoms of TK2D by sharing our fantastic infographics. We've slightly updated these from 2023, so please do replace your older graphics with these ones. Download the version in English or landscape version in English, or...
9 August 2024
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Seeking the patient perspective: Living with LHON
Hello there The results of the forums have been published in two reports (see links below). They captured the key discussions and provided people living with LHON the important opportunity to connect on critical issues, share experiences and make r...
9 August 2024
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LHON webinar – Save the date!
Theme: LHON & Gene Therapy: Where are we now? Save the date for a free, interactive webinar discussing gene therapy and LHON. Hear the latest from companies developing gene therapies for LHON, clinical experts and someone who has been part of a gen...
9 August 2024
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Meet
a member
Lily Foundation
The Lily Foundation is a UK charity which raises funds for mitochondrial disease research, raises awareness of the condition and supports affected families. Their vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
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a member
Are you thinking of becoming an IMP member?
Patient Stories
Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.
About
IMP
International Mito Patients is a network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.
By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.
IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.
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to date
