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World Mitochondrial Disease Week is 16 - 22 September 2024

During Awareness Week, we aim to illuminate pathways toward revitalisation. By shedding light on the challenges faced by people affected by mito, we can cultivate a community of support and understanding.

Mark your calendars for Light up for Mito - Saturday 21 September!

Light up for mito is a global event that sees locations, from city monuments to household porches lit up in mito-green. This is to raise awareness of mito and forms part of World Mitochondrial Awareness Week.

TK2d Awareness Day

Tuesday 10 September marks World TK2D Awareness Day. Click on the link to learn more about this rare genetic type of mitochondrial disease and to see how you can support TK2d Awareness Day.

LHON Awareness Day

We will be supporting LHON Awareness Day on 19 September by hosting a free webinar titled ‘LHON and Gene Therapy: Where are we now?
Please join us for a free webinar for everyone affected by, or working with LHON.

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Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.

About
MITO

NEWS

Updated TK2d infographics to download

Help raise awareness of the symptoms of TK2D by sharing our fantastic infographics. We've slightly updated these from 2023, so please do replace your older graphics with these ones. Download the version in English or landscape version in English, or...

Seeking the patient perspective: Living with LHON

Hello there The results of the forums have been published in two reports (see links below). They captured the key discussions and provided people living with LHON the important opportunity to connect on critical issues, share experiences and make r...

LHON webinar – Save the date!

Theme: LHON & Gene Therapy: Where are we now? Save the date for a free, interactive webinar discussing gene therapy and LHON. Hear the latest from companies developing gene therapies for LHON, clinical experts and someone who has been part of a gen...

Meet
a member

This logo is a link to the Lily Foundation website.

Lily Foundation

The Lily Foundation is a UK charity which raises funds for mitochondrial disease research, raises awareness of the condition and supports affected families. Their vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.


Become
a member

Are you thinking of becoming an IMP member?

Patient Stories

Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.

About
IMP

International Mito Patients is a network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.

By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.

IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.


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