You are not alone
People affected by mito sometimes feel isolated: geographically, emotionally and socially. With some forms of mito being desperately rare, it can be difficult to find others with the same condition. It’s important to know that you are not alone, and there are others out there who understand and can relate to what you are going through.
There are lots of ways to connect with others affected by mito.
If you are a clinician and would like to help mito patients in countries where local specialist medical assistance is limited or unavailable, please contact us.
Find a local IMP member
IMP’s member organisations have a variety of support services for people living locally. Click here to view our list of members to see if there is one in your country.
Where there is no national body, or little or no specialist care, please contact us to request assistance.
Access online resources
Visit our ‘Resources’ page for signposting towards the huge array of information that is available through our partners websites. From information on mitochondrial donation, to guides to speaking to healthcare professionals, there is a wealth of information that can support you in your mito journey.
If you want to start a mito support group
Perhaps there is no mito patient group in your country and you’re thinking of starting a group to connect with others affected by mito in your area. We have guides to help you with steps such as starting a group, setting up a website and managing social media, and fundraising. See our ‘How to guides’
If you are thinking of starting a support group, we’d love for you to join us a member of IMP. For the benefits of members please see ‘Become a member’ for more information.
Join IMP’s closed Facebook group
The IMP Closed Facebook Group is a virtual support group for everyone affected by mito. Members are spread around the world, have many different types of mitochondrial disease, some are patients, others are parents and carers, some may have recently heard of mito and be at the start of their journey, others have been part of the mito community for years.
Members offer support, share experiences and provide a safe space to connect with others affected by mito.
If you’d like to connect with others in the mito community, join us today.
Follow IMP’s Facebook page
Follow the IMP Facebook page to find out about the latest research and activities from around the world.
Join a Facebook group in your language
If you are aware of other groups that are not listed here, please do let us know.