IMP publishes ‘How to’ guides

1 Jan, 2024

Setting up a patient led organisation can be daunting. With so much to think about, from governance to marketing, it can feel overwhelming. We want to support our members and those thinking about setting up new mito patient organisations by sharing all that we’ve learnt.

Starting with the ‘Guide to starting up a mito patient organisation’, we will be publishing a series of resources designed to take some of the strain out of figuring it all out.

We’d like to thank the Axial Spondyloarthritis International Federation (ASIF) for generously sharing with us the templates of their excellent ‘How To’ guides. IMP have been working to tailor these to mito patients and seedling patient groups and we will be sharing these via our website and newsletter. 

Our first title ‘Guide to starting up a mito patient organisation’ is now available. Future titles will include guides on fundraising, how to make best use of social media; and how to set up and manage a website.

We’d love to get your feedback. Please have a look and let us know what you need.