Events
Mitochondrial Disease Information Open Day
The Australian Mitochondrial Disease Centre warmly invites you to join us for our annual Mito Open Day—a special event bringing together patients, families, clinicians, and researchers to connect, learn, and share.
Now in its 31st year, the clinic continues to evolve with new discoveries and care practices. This event is your opportunity to hear the latest updates, meet the team behind the care, and join a supportive community of people who understand the mito journey.
What You Can Expect
✅ A welcome and update from Professor Carolyn Sue, Director of the Australian Mitochondrial Disease Centre✅ Patient stories shared by individuals and families living with mito
✅ Expert talks on:
The latest research and clinical trials
Nutrition and mitochondrial health
✅ Morning tea and lunch provided
✅ Time to connect with other patients, carers, and families
✅ Interactive information stations on research, genetic testing, reproductive options, and more
✅ Optional small group tours of the NeuRA research facilities
Who Should Attend
People living with mitochondrial diseaseFamilies and carers
Healthcare professionals and allied health staff
Researchers and students
Anyone interested in supporting or learning more about mitochondrial disease
Why It Matters
Living with a rare disease can be isolating. This event is designed to provide you with the most up-to-date information in a warm, welcoming environment. It’s also a space to share your voice, ask questions, and build community.
Register here: https://events.humanitix.com/mitochondrial-disease-information-open-day
09/04/2025
Sydney, Australia and Online
National Mito Information Day
Information day for Mitochondrial patients and interested parties. This day is organised by the expertise centre for mitochondrial diseases, Radboud UMC in Nijmegen together with the patient advisory board. The day will consist of a plenary part where the international state of research will be communicated and workshops on living with mitochondrial disease. There is also plenty of room for fellow sufferers to interact during lunch and breaks. The day is free of charge and you can register via this link: https://www.survio.com/survey/d/B5O9V7Q3K1Z5W5Q8V
09/20/2025
University Medical Centre - Auditorium Nijmegen the Netherlands
２０２５ミトコンドリア病周知啓発ライトアップ
Following last year, we will again illuminate the “Kaze no Tsuribashi” (Wind Suspension Bridge) in Togawa Park in green on September 20 and 21, from dusk until 9:00 PM.
Last year, the event was co-hosted with another patient organization (MCM), but this year it will be organized solely by the Japan Mitochondria Green Society.
On September 20, from 3:00 PM to 7:00 PM, we will hold awareness activities near the bridge, including the distribution of pamphlets and a small concert to raise awareness of mitochondrial disease.
09/20/2025
Hadano Togawa Park ,Hadano City, Kanagawa prefecture, Japan
