Primary Mitochondrial Myopathies: Patient Journey

20 Dec, 2024

Navigating the journey to gain a diagnosis of Primary Mitochondrial Myopathy can be unnecessarily long, intensely stressful, and fraught with obstacles.
 
IMP is collaborating on a project to document the optimum journey for patients from suspected PMM to diagnosis and management. 

The project will initially use information from European based patients and healthcare systems. We anticipate that the Journey can then be used as a template for other countries.