Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.
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MITO
NEWS
Germany Takes a Major Step Toward Access to TK2d Therapy
A significant milestone has been reached for families affected by TK2d: Germany has now formally recognised Kygevvi®, the first disease‑specific […]...
2 September 2026
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Strengthening Connections: IMP’s Ambassador Meetings
IMP has begun hosting regular Ambassador Meetings, creating a welcoming space for representatives from our member organisations to connect, share updates, […]...
2 September 2026
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LHON Webinar: 19 September – registration open
The LHON Awareness Day Webinar is approaching quickly, taking place on 19 September (13:00–15:00 CEST). This year’s theme — Best practices in LHON: stories […]...
2 September 2026
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Updated TK2d videos now available
Three new TK2d Awareness Day videos are being released in the lead‑up to 8 September, each sharing a deeply personal […]...
2 September 2026
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ERN‑RND Scientific Symposium: Registries for Rare Neurological Diseases
On 10 October 2026, the European Reference Network for Rare Neurological Diseases (ERN‑RND) will host a dedicated scientific symposium focused on […]...
2 September 2026
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The POLG Foundation
The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.
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Patient Stories
Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.
About
IMP
International Mito Patients is a non-profit network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.
By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.
IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.
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