Primary Mitochondrial Myopathies: Patient Journey
Navigating the journey to gain a diagnosis of Primary Mitochondrial Myopathy can be unnecessarily long, intensely stressful, and fraught with obstacles.
Countdown to Rare Disease Day 2025!
The countdown is on to Rare Disease Day 2025 which takes place on 28 February.
Collaboration with MITGEST
IMP is proud to support MITGEST. This international consortium brings together world-class academic experts in mitochondrial research.
SIMPATHIC project prepares to launch clinical trial
The SIMPATHIC project is preparing to launch a clinical trial using Sildenafil as a potential treatment for Leigh syndrome.
IMP joins UK MitoCohort Oversight Committee
IMP are delighted to have been asked to join the UK MitoCohort Oversight Committee. The UK Mitocohort is a UK wide database that collects clinical information on patients living with mito, to help advance understanding of the disease.
The PolG Foundation: Advancing Research and Hope for POLG Disorders
The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.
LHON Awareness Day Webinar
During this year’s World Mitochondrial Disease Week, IMP hosted a free webinar on 19 September for LHON Awareness Day. The theme for the webinar was LHON and Gene Therapy: Where are they now?
Khondrion announces publication of results of integrated Phase 2b programme
On 7 November, biopharmaceutical company Khondrion announced the publication of results from their integrated Phase 2b clinical development programme which uses the drug sonlicromanol to target the underlying pathways of primary mitochondrial disease.
World Mitochondrial Disease Week 2024
We had an amazing World Mitochondrial Disease Week this year. This year’s Awareness Week theme was Illuminate Tomorrow: Revitalize your energy. From 16-22 September, our member organisations and community around the world hosted events and took to social media to raise awareness about mito.