IMP Annual Meeting 2026 – Celebrating 15 years
The International Mito Patients (IMP) Annual Meeting 2026 brought together advocates, clinicians, researchers and partners from around the world to […]
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Registration is now open for the TK2d International Webinar 2026 .
TK2d across countries: diagnosis, multidisciplinary care and therapeutic pathways Registration is now open for the international webinar “TK2d Across Countries: Diagnosis,
A word from our new member ASANOL
On 29 May, we had the opportunity to participate, for the first time as ASANOL, in the International Mito Patients meeting
World Mitochondrial Disease Week 2026: Putting Mito on the Map
We’re delighted to announce the launch of this year’s World Mitochondrial Disease Week theme: “Putting Mito on the Map.” Members asked
New Patient Journey for Primary Mitochondrial Myopathies Launched
IMP has worked with ERN EURO‑NMD and several leading patient organisations, including Mitocon, the Bulgarian Association for Neuromuscular Diseases, and
New TK2d Early Symptom Reflection Tool Supports Better Clinical Conversations
UMDF, in collaboration with UCB, has launched a new resource designed specifically for people living with TK2d and those who
The role of amino acids in some forms of mito
On May 9, 2026, International Mito Patients was represented at the Cognate Amino Acid for tRNA Synthetase Disorders Consortium meeting
UCB calls all artists in the mitochondrial disease community
This year UCB is collaborating with the global Mitochondrial disease community to collect works of art (painting, poetry, photography, sculpture,
Effect of a Mitochondrial Genetic Variant on Sevoflurane Hypersensitivity
Five years ago, a research project began that is now influencing anesthetic practice worldwide. It all started when Dr. Yaremy
First Patient Dosed in Phase 3 KHENERFIN Study of Sonlicromanol for m.3243A>G Primary Mitochondrial Disease
First Patient Dosed in Phase 3 KHENERFIN Study of Sonlicromanol for m.3243A>G Primary Mitochondrial Disease Khondrion has announced a major