Germany Takes a Major Step Toward Access to TK2d Therapy
A significant milestone has been reached for families affected by TK2d: Germany has now formally recognised Kygevvi®, the first disease‑specific […]
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New Study Strengthens Patient‑Centred Endpoint Selection for KHENERFIN Phase 3 Trial
Khondrion has announced the publication of an important qualitative study in Orphanet Journal of Rare Diseases examining the lived experience
A note from the Chair: One Voice, 25 Nations — The Power of Our Global Umbrella
Paula Morandi, Chair of IMP When you hear the acronym IMP, what comes to mind? To many, International Mito Patients
Registration is now open for the TK2d International Webinar 2026 .
TK2d across countries: diagnosis, multidisciplinary care and therapeutic pathways Registration is now open for the international webinar “TK2d Across Countries: Diagnosis,
A word from our new member ASANOL
On 29 May, we had the opportunity to participate, for the first time as ASANOL, in the International Mito Patients meeting
World Mitochondrial Disease Week 2026: Putting Mito on the Map
We’re delighted to announce the launch of this year’s World Mitochondrial Disease Week theme: “Putting Mito on the Map.” Members asked
New Patient Journey for Primary Mitochondrial Myopathies Launched
IMP has worked with ERN EURO‑NMD and several leading patient organisations, including Mitocon, the Bulgarian Association for Neuromuscular Diseases, and
New TK2d Early Symptom Reflection Tool Supports Better Clinical Conversations
UMDF, in collaboration with UCB, has launched a new resource designed specifically for people living with TK2d and those who
The role of amino acids in some forms of mito
On May 9, 2026, International Mito Patients was represented at the Cognate Amino Acid for tRNA Synthetase Disorders Consortium meeting
UCB calls all artists in the mitochondrial disease community
This year UCB is collaborating with the global Mitochondrial disease community to collect works of art (painting, poetry, photography, sculpture,