Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.
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MITO
NEWS
A word from our new member ASANOL
On 29 May, we had the opportunity to participate, for the first time as ASANOL, in the International Mito Patients meeting […]...
7 July 2026
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World Mitochondrial Disease Week 2026: Putting Mito on the Map
We’re delighted to announce the launch of this year’s World Mitochondrial Disease Week theme: “Putting Mito on the Map.” Members asked […]...
7 July 2026
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New Patient Journey for Primary Mitochondrial Myopathies Launched
IMP has worked with ERN EURO‑NMD and several leading patient organisations, including Mitocon, the Bulgarian Association for Neuromuscular Diseases, and […]...
7 July 2026
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New TK2d Early Symptom Reflection Tool Supports Better Clinical Conversations
UMDF, in collaboration with UCB, has launched a new resource designed specifically for people living with TK2d and those who […]...
30 June 2026
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UCB calls all artists in the mitochondrial disease community
This year UCB is collaborating with the global Mitochondrial disease community to collect works of art (painting, poetry, photography, sculpture, […]...
11 June 2026
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The POLG Foundation
The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.
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Patient Stories
Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.
About
IMP
International Mito Patients is a non-profit network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.
By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.
IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.
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