Mitochondrial diseases (mito) are a highly complex set of rare genetic disorders. Mito can cause any symptom in any organ at any age. They rob the body’s cells of energy causing debilitating and often life-threatening organ dysfunction.
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NEWS
IMP welcomes European Commission approval of KYGEVVI® for TK2d
European Commission approves KYGEVVI® for TK2d IMP warmly welcomes the decision by the European Commission to approve KYGEVVI® (doxecitine and doxribtimine) as […]...
31 March 2026
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Announcing IMP’s New Scientific and Medical Advisory Committee
Announcing IMP’s New Scientific and Medical Advisory Committee IMP is delighted to introduce our new Scientific and Medical Advisory Committee, a […]...
28 March 2026
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New MELAS Consensus: A Critical Resource for Doctors and Patients Worldwide
New MELAS Consensus: A Critical Resource for Doctors and Patients Worldwide In November 2025, leading international experts gathered in Pisa, […]...
28 March 2026
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MitMED – Building a European Centre of Excellence in Mitochondrial Medicine
MitMED – Building a European Centre of Excellence in Mitochondrial Medicine Mitochondria are central regulators of cellular life, integrating metabolism, […]...
28 March 2026
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Growing Recognition of the Patient Voice in Research
Growing Recognition of the Patient Voice in Research A meaningful shift is taking place in the rare disease research landscape: […]...
25 March 2026
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The POLG Foundation
The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.
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Patient Stories
Ellie was a fighter from birth. Born in October 2017, a lack of oxygen at birth meant she needed to spend the first week of life in intensive care. This early battle in life would later be a blessing in disguise as it meant she required regular neurological reviews to review how her brain and movement developed. Ellie’s early months were mainly happy. She cried, babbled and smiled like any baby does and loved baths with her big sister, kicking her legs to music and chatting away with her mum and dad.
About
IMP
International Mito Patients is a non-profit network of national patient organisations involved in mito. The national patient organisations support and advocate for patients, fund research, increase awareness and improve education in their country.
By joining forces, IMP represents a large group of patients, creating a stronger voice on an international level.
IMP’s mission is to increase the quality of life for people with mitochondrial disease by facilitating cross-border cooperation and collaboration among national patient organisations.
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