Author name: Magda

Stories

La Storia di Marzia

Tutto è iniziato il 17 dicembre del 2011, quando sono stata ricoverata d’urgenza per un’emergenza grave, il disseccamento della carotide. Sono stata in ospedale per tre mesi senza che però sia emerso il sospetto della mia malattia.

Stories

La Storia di Gabriella 

Mio figlio si è ammalato quando aveva vent’anni non ancora compiuti, la diagnosi era neuropatia ottica ereditaria di Leber (LHON), una malattia mitocondriale che colpisce il nervo ottico.

Latest News

STRIDE drug trial cancelled

We are always hopeful new drugs will be found that can take us closer to effective treatments and ultimately a cure. IMP is incredibly disappointed to learn that Reneo Pharmaceuticals has terminated its Phase III Stride trial

Example of a guide - 'Guide to starting a mito patient organisation'
Latest News

IMP publishes ‘How to’ guides

Setting up a patient led organisation can be daunting. With so much to think about, from governance to marketing, it can feel overwhelming. We want to support our members and those thinking about setting up new mito patient organisations by sharing all that we’ve learnt.

Stories

Shelley’s Story 

I had never heard of mitochondrial disease until 3 years ago. My journey started when my mother experienced a rapid decline in health, losing muscle in most parts of her body and struggling to breathe. Her, my older brother and I all experienced hearing loss at a young age

Stories

Maddie’s Story

Maddie’s journey began in 2011. Her mother, Sara, quit her job to stay at home to take care of their new baby. Sara could tell something wasn’t quite right with her daughter. Being with Maddie all day allowed Sara to track Maddie’s changes, but she couldn’t put her finger on what was wrong

Stories

Garry’s Story 

Garry Kruger didn’t understand what was happening, but he does remember that his symptoms started in 1999. He was experiencing leg and foot pain, lower back pain and he noticed that his eyelids appeared to be drooping

Translate
Scroll to Top
Skip to content