SIMPATHIC project prepares to launch clinical trial
The SIMPATHIC project is preparing to launch a clinical trial using Sildenafil as a potential treatment for Leigh syndrome.
Latest News
IMP joins UK MitoCohort Oversight Committee
IMP are delighted to have been asked to join the UK MitoCohort Oversight Committee. The UK Mitocohort is a UK wide database that collects clinical information on patients living with mito, to help advance understanding of the disease.
The PolG Foundation: Advancing Research and Hope for POLG Disorders
The PolG Foundation is committed to accelerating research efforts to develop effective treatments and, ultimately, a cure for POLG mitochondrial disorders.
LHON Awareness Day Webinar
During this year’s World Mitochondrial Disease Week, IMP hosted a free webinar on 19 September for LHON Awareness Day. The theme for the webinar was LHON and Gene Therapy: Where are they now?
Khondrion announces publication of results of integrated Phase 2b programme
On 7 November, biopharmaceutical company Khondrion announced the publication of results from their integrated Phase 2b clinical development programme which uses the drug sonlicromanol to target the underlying pathways of primary mitochondrial disease.
World Mitochondrial Disease Week 2024
We had an amazing World Mitochondrial Disease Week this year. This year’s Awareness Week theme was Illuminate Tomorrow: Revitalize your energy. From 16-22 September, our member organisations and community around the world hosted events and took to social media to raise awareness about mito.
Updated TK2d infographics to download
Help raise awareness of the symptoms of TK2D by sharing our fantastic infographics. We’ve slightly updated these from 2023, so please do replace your older graphics with these ones.
Download the version in English or landscape version in English, or follow the links for versions in Italian, Spanish, and German:
Seeking the patient perspective: Living with LHON
Hello there
The results of the forums have been published in two reports (see links below). They captured the key discussions and provided people living with LHON the important opportunity to connect on critical issues, share experiences and make recommendations.
LHON webinar – Save the date!
Theme: LHON & Gene Therapy: Where are we now?
Save the date for a free, interactive webinar discussing gene therapy and LHON.
Hear the latest from companies developing gene therapies for LHON, clinical experts and someone who has been part of a gene therapy clinical trial. And find out what you can do to ensure the voice of people living with LHON is heard!
Our webinar will be on 19 September 2024 from 13:00 – 15:00 CEST. To register your interest click on the link below.
Latest News
Italy leads way for legislation re mito DNA replacement
News from Mitocon: Italy leads the way in the European Union with a secondary legislation for testing mitochondrial DNA replacement techniques