The International Mito Patients (IMP) Annual Meeting 2026 brought together advocates, clinicians, researchers and partners from around the world to […]...

TK2d across countries: diagnosis, multidisciplinary care and therapeutic pathways Registration is now open for the international webinar “TK2d Across Countries: Diagnosis, […]...

On 29 May, we had the opportunity to participate, for the first time as ASANOL, in the International Mito Patients meeting […]...

We’re delighted to announce the launch of this year’s World Mitochondrial Disease Week theme: “Putting Mito on the Map.” Members asked […]...

IMP has worked with ERN EURO‑NMD and several leading patient organisations, including Mitocon, the Bulgarian Association for Neuromuscular Diseases, and […]...

UMDF, in collaboration with UCB, has launched a new resource designed specifically for people living with TK2d and those who […]...

On May 9, 2026, International Mito Patients was represented at the Cognate Amino Acid for tRNA Synthetase Disorders Consortium meeting […]...

This year UCB is collaborating with the global Mitochondrial disease community to collect works of art (painting, poetry, photography, sculpture, […]...

Five years ago, a research project began that is now influencing  anesthetic practice worldwide. It all started when Dr. Yaremy […]...

First Patient Dosed in Phase 3 KHENERFIN Study of Sonlicromanol for m.3243A>G Primary Mitochondrial Disease Khondrion has announced a major […]...

We are delighted to announce that three additional mitochondrial organisations have joined IMP, further strengthening our global network and amplifying […]...

European Commission approves KYGEVVI® for TK2d IMP warmly welcomes the decision by the European Commission to approve KYGEVVI® (doxecitine and doxribtimine) as […]...

Announcing IMP’s New Scientific and Medical Advisory Committee IMP is delighted to introduce our new Scientific and Medical Advisory Committee, a […]...

New MELAS Consensus: A Critical Resource for Doctors and Patients Worldwide In November 2025, leading international experts gathered in Pisa, […]...

MitMED – Building a European Centre of Excellence in Mitochondrial Medicine Mitochondria are central regulators of cellular life, integrating metabolism, […]...

Growing Recognition of the Patient Voice in Research A meaningful shift is taking place in the rare disease research landscape: […]...

Inside the Mito Town Hall: Insights That Matter The Mito Town Hall meetings have become an important annual touchpoint for […]...

The Mitochondrial Disease Conference 2026, hosted by Mitocon on 23–24 January in Pisa, brought together clinicians, researchers, patients, and industry partners for […]...

Setback for LHON Treatment in the US: IMP Supports Urgent Patient Need International Mito Patients (IMP), the global federation representing patient […]...

Strengthening Europe’s Rare Epilepsy Voice Through the E+ Alliance The E+ Alliance presentation outlines a fast‑growing European network dedicated to […]...